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People with Crohn's, UC often suffer in silence; Local Volunteer Does Something About It & You Can Too

Oct. 16, 2011

Jane Riley Best is a Development Assistant with the Crohn’s & Colitis Foundation of America (CCFA), Wisconsin Chapter. She has signed up for her first half-marathon (13.1 miles) as a volunteer with CCFA’s Team Challenge in Las Vegas on Dec. 4. She has committed to raise $3,600; but her personal goal is $4,000 + to benefit the foundation and it’s Wisconsin patients.

 

“Since becoming affiliated with the CCFA in July 2011, I have met so many people affected by Crohn's or Colitis, collectively known as IBD (Irritable Bowel Syndrome). I'm not just talking about the people I've met through Team Challenge, but people right in my circle of friends, former classmates as well as new acquaintances. During my work day, I meet many patients and family members calling our Office for information on our Support Groups, Educational Opportunities or those who want to become active in finding a cure for the diseases through our fundraising efforts. On my Team Challenge fundraising campaign, so many more have come forward and make me so proud to be an active participant.”

 

Many of us know someone who is affected by these diseases and are completely unaware. Those affected by irritable bowel disease (IBD) don't necessarily look sick and most patients suffer in silence. Many patients go for extended amounts of time before seeking medical care. This past summer youth from Illinois and Wisconsin attended Camp Oasis in Waupaca that is specifically for those with Crohn’s or ulcerative colitis. Staffed with volunteer medical personnel, the campers can be themselves and know that their peers understand their challenges….they face them, as well. It is a week where a kid really can be a kid. Substantial funding comes from CCFA Wisconsin and it’s programs.

 

Many effected by Crohn’s or Colitis appear healthy on the outside. Yet on the inside, their systems are fighting a continual battle of pain, discomfort, fatigue and the often resulting isolation. Many are afraid to acknowledge they have the disease for fear that they will be defined by it. Others are outspoken ambassadors for finding a cure. Many of the participants of Team Challenge Wisconsin are Crohns or Colitis patients or have family members with it. Best says. “I am further inspired to run alongside them and find a cure.”

 

There is no cure, yet. The only way to find a cure is through research. The way to fund research is through grants, donations, fundraising and raising public awareness.

The Crohn's and Colitis Foundation's website, www.ccfa.org bares out what a respected organization CCFA is. Any donations made will be put to good use, whether it is patient support programs, health care provider educational seminars or research. More than 80 cents for every dollar you donate goes DIRECTLY to the mission of CCFA, which is To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Your tax deductible donation STAYS in WISCONSIN.

 

Team Challenge Wisconsin team members are hosting third party fundraisers throughout the Milwaukee Metro area. These are easy ways to participate in a good cause such as dog washes, car washes, dining out events and wine tastings where a portion of your purchase helps these team members to reach their fundraising goals and to benefit many. Maybe even someone you know! Go to the Wisconsin Chapter site to see what activities you can join in on. http://www.ccfa.org/chapters/wisconsin/ Everyone is welcome to participate.

 

One Event you do not want to miss is being hosted by Jane Riley Best. It will be held at Best Place at the Historic Pabst Brewery 901 West Juneau Ave, Milwaukee, WI 53233 on October 23, 3:15pm. Proceeds will benefit CCFA Wisconsin.

 

Cheer on the Pack as they tackle the Minnesota Vikings at 3:15pm. http://tinyurl.com/jrb1234. There will be raffle items, food available and a great time. No crummy jello shots. No cheap green lime vodka shots. When the Packers are a scoring, the Pabst beer will be a pouring! The Gift shop is open Noon to 6:00 pm and Tours are available before the event on Sunday - 1:00 pm & 3:00 pm $7.00 ($2.00 discount for Military Personnel) **

 

Best Place at the Historic Pabst Brewery, the former Pabst Corporate Offices & Visitor’s Center, is a Certified Historic Structure on the National Register of Historic Places and currently the home of the BEST Packer Parties in town viewed on a big screen. Thanks to owner, Jim Haertel, great care has been taken to ensure that Blue Ribbon Hall, The Captain’s Courtyard, The Guest Center, The King’s Courtyard, and the original Gift Shop have all been restored to their original glory.

 

Bring Your Pack to cheer on the Defending Super Bowl Champs on Sunday, Oct 23 @ 3:15pm.

Be a part of a team that is making a difference.

The funds raised by Team Challenge Wisconsin STAY in Wisconsin!

 

To donate safely and securely online, visit http://tiny.cc/zeij9

OR Checks may be made out to and mailed to

CCFA WI

Attn Jane Riley Best

1126 S 70th St S210A

Milwaukee, WI 53214

 

 

You will be glad you did!

 

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